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Kaleidoscope: The Cortical Visual Impairment Podcast

Dec 19, 2018

I’m reflecting on 2018. For me, this has been the Year of the CVI Advocate. My life has been transformed by my interactions with fellow CVI parent advocates – online, at conferences and through this podcast.

From Start Seeing CVI Advocacy on Facebook to Boston for the CVI Symposium to Omaha for the American...

Oct 31, 2018

Sisters Anna Ault and Lori Kinney are raising daughters with visual impairments. One has cortical visual impairment, the other an ocular visual impairment. We discuss their parallel but unique experiences advocating for CVI and Leber’s congenital amaurosis.

They are raising their kids in the same community –...

Sep 23, 2018

Opera performance student Dagbjört Andrésdóttir gives us a glimpse into her life with cortical visual impairment, describing music and strong parental support as her saving grace.

“I kind of knew always there was something, but I wasn’t sure if it was my vision or something else,” says Dagbjört.

Three years...

Aug 18, 2018

Krish (6) received an early CVI diagnosis and guidance from a teacher of the visually impaired who knew how to intervene appropriately, based on his CVI Range score. With neuroplasticity and dedicated parents on his side, he’s heading to kindergarten with improved functional vision and a CVI-rich IEP.

Krish holds up two monkey stuffed animals.

In this...

Jul 18, 2018

When Alisha Waugh and her husband learned that their son Griffen (10) has a cortical visual impairment (CVI), they committed to improving his functional vision above all else – and with stellar results.

Alisha puts her Perkins-Roman CVI Range Endorsement to work each and every day for Griffen. She is also serving...